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Tuesday, November 24, 2009
Speaking of new
As I've mentioned, we're working on a new Web site and in order for the blogs to connect to the new site, I have to write them through it.
And, because the site is waiting on me to finish up the writing to go live, it's taking longer than I'd hoped.
Beat me and flog me, but I'm hoping to finish it all up this weekend.
Everything is going well though and I can't wait to share all the new leaves we've turned.
Happy Thanksgiving!
Monday, October 12, 2009
New leaves
- I'm glad that Danny lived
- I'm glad that Corbin is healthy
- I'm glad that Corbin loves his Daddy so much that he doesn't see a wheelchair
- I'm glad that we have parents that love us just shy of only what God can
- I'm glad that people find it in their hearts to give their hard earned money to Danny's recovery
- I'm glad that I don't have to feed Danny through a tube, but that we can all sit down at the table and eat together
- I'm glad to hear Corbin tell Danny that he loves him, out of the blue
- I'm glad that Corbin doesn't remember the really dark, hard times
- I'm glad that I can sleep next to my husband, even if I have to wake up with him during the night, he's still there
- I'm glad that we've gained friends that love us in spite of the hardships
- I'm glad that my husband is a fighter, for himself and for his family
- I'm glad that strangers offer assistance because they see a need
- I'm glad that I don't get so uptight about having to wait in line; there are just some things more important in life
- I'm glad that when I doubt, when I feel lost and I cry out, God answers
- I'm glad there are seasons in life and we can turn our leaves
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"Our mouths were filled with laughter, our tongues with songs of joy. Then it was said among the nations, "The LORD has done great things for them." Psalm 126:2
Wednesday, September 2, 2009
Drawing a blank
He seemed to have a good first day; however, he did confess to a single time out visit before we were even out of the parking lot. Guilty conscience, I guess. Apparently, he and one of the new boys were chasing each other during circle time. You have to watch out for those new kids.
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Additionally, Corbin and I vacated GA for a week and headed west to AZ before school started. It was nice to be with family and it was even better to see Corbin play until exhaustion with his cousins; all boys! I will spare you pictures of me in a bathing suit, but here are a few shots from our trip.
Corbin finally letting go of the wall and getting in open water. Nothing like a little healthy peer/cousin pressure.My nephews and Corbin. Even without the matching hair cuts, I think they definitely can't deny their genes.
Dad and I took Corbin and B to Peter Piper for bad pizza and fun games. B actually took this picture of us.
Mom and I took a cooking class together which was a lot of fun.
Corbin adores his Papa and often uses missing him as an excuse for bad behavior. It's so funny to me how he inherently figures out how to pull the strings. Corbin gets in trouble, he is crying/whining and says "I just miss Grammy and Papa." The first time he said it, I burst out laughing.
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As expected, Danny survived while we were gone, although I know he missed us. He continues to make improvements in therapy and has even transitioned some of those to the home.
While we were in AZ, Danny's mom called to tell me that he'd done something new at home. Apparently, he got the notion that he wanted to try to hold onto the bar in the kitchen and stand up to stretch his legs and back. He didn't tell anyone what he was doing until the last moment and wound up standing for about four minutes at the counter. I love it when he takes initiative.
However, I wasn't too thrilled when last night while I was tucking Corbin back into bed, he decided to try to stand up out of his chair. No one around, no walker or anything else to hold on to; he was practically upright when I walked back into our room. The only body part touching his wheelchair was his hands on the wheels. Thankfully, after a mild slip into mothering him, did he realize that wasn't the best idea, but he just wanted to see if he could do it.
What he did do today though was big news! In therapy, he climbed up and down a flight of stairs twice. A grand first and according to Candy, a "good day for Big D."
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Speaking of Candy, I have to mention how well the filming went for the promotional video. The interviews with Dr. Kaelin and Candy went better than expected and I am trying to figure out how they're going to whittle down the footage. My interview went okay to me, perfect to them, but it was very difficult and I just hope I conveyed all that I really wanted to. Danny and I also had a joint interview which went well considering Danny has always hated to have his picture taken, which is exaggerated now. He is shy about talking sometimes because he doesn't think people can understand him and at times, it takes him a while to get a thought out of his mouth. However, he did well and it should be good for you all to hear a bit from him too.
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We're finalizing our logo now and then work will be done for the Web site. I'm really excited to debut it all to you and hopefully raise some awareness, some funds and have fun in the process.
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Speaking of fun and funds, we're having another golf tournament next month, October 19th at Bridgemill Country Club. We're finalizing the flyer and on line registration now, as we're having to have the NTAF folks approve it for contributors' tax deduction purposes. Once that is complete, I'll include the link above in the "Mark Your Calendars" section.
Also, if you ride or know someone that does, Killer Creek Harley Davidson is holding their 3rd Annual Beau Memorial Ride with all proceeds going to Danny. It will be held on Sunday, October 25th and registration begins at 4pm. You can find details above and on the sidebar.
We hope you all will try to attend one of these events or you can always donate via our NTAF Web site. Information is at the bottom of this page.
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I'd like to ask you all to pray for me. Lately, I have felt like I'm at my wit's end and have begun questioning life and God a lot. None of this really makes any sense to me; why this happened or what we're supposed to do with it or how long is this going to last? Will it end on earth or in heaven? Can I make it? As I said in my previous post, there are always more questions than there are answers. Going into Year Five, I think I feel very helpless and am beginning to have to push away thoughts of doubt. Doubt of what? Everything. I know God is here and has been. I know He has a plan and He has Promises, but how does that translate into my life? My faith waivers and yet through praise I am bolstered only to have the bottom fall out again. I'm tired of the cycle, the rollercoaster, the unknown. I want to be smack dab in the middle of God's will and I need and am ready for Him to reveal His purpose so we can be used for His glory. I'm done with this chapter and want to move on to the next, so what's the hold up?
I'm still drawing a blank.
Monday, August 17, 2009
Faulty Four Years
From this........
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I swing between being pumped up and encouraged, to the rug being pulled out from under me.
"He must become greater; I must become less."
II Corinthians 12:9, 10
"But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. 10That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong."
Many times Danny asks me questions about August 16, 2005; how did so-and-so find out about it, who was there first, who all came to the hospital, etc.
Below, I have posted excerpts from a letter I wrote to Danny about that day, from my prospective. I have taken out names for identity issues and have removed some lines. I know this is a personal letter to Danny, but it will give you all a perspective on where life was that day. It took me weeks to write it as it was like reliving each excruciating moment.
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My Dearest Danny,
August 16, 2005 is a day that is forever scorched into my memory. I remember smells, sounds, sights and overwhelming sadness and shock.
As you know I was in Arizona working in my new job, but also working to come back home to you. Life was so confusing during that time; do we stay or do we go? Our marriage was upside-down and I was in the dark to what was really happening in GA and in your mind, in your heart. I felt alone and frustrated, confused and a longing for an end to it all. I desperately needed to get to you, but felt so far away and felt there was something keeping me from finding you; a separation of sorts.
That awful day that set our lives on a new course, I was wearing a purple, short-sleeved shirt that barely covered by growing belly and cropped khaki colored XL maternity pants. My shoes were one size too big and in a wide width. I was huge and hot. I had a fan under my desk in my cubicle to keep me cooler.
I spoke to you that morning about 10:45am local time (1:45pm in GA). I had called your cell phone and you got a call on the land line while I was on the phone. You told me to hold and answered the phone. I’m not sure who it was, but I distinctly remember you telling whomever that you had the “old lady” on the other line. You quickly came back on the line with me and told me you would need to call me back. I told you I was headed to lunch shortly and I would be back at my desk about 11:30am.
......My Nextel beeped and I immediately thought it was you, but “Jonathan” came up on the screen. I thought it odd that he’d call me during the day especially since he’d not done it before, but then I thought maybe it was something to do with the boys. Kari was out of town at training and perhaps he needed me.
I thought it odd too, that he asked me where my office was located. I gave him the cross streets; 96th and Shea Blvd. “Why?” I asked. He told me he was coming to pick me up and take me to the airport and put me on a plane. Split second thoughts were that he was a. kidding or b. hurrying up our plan to have me home by the end of the week. As you know, it was neither of those choices.
He told me that you’d been in a motorcycle accident and that it was serious. You were in the hospital and I needed to get back to Georgia. Shockingly, I was calm enough to tell him exactly where to pick me up and told him I’d meet him outside.
I hung up with Jonathan and asked ____ to come over to my cube and quickly. The tears started to come and I couldn’t breathe; I’m sure there wasn’t much color to my face. I turned from her and began riffling through my desk draws to get anything that I couldn’t live without, all the while telling her that you’d been in an accident and I had to go and wouldn’t be coming back. I took a deep breath and one last look around my desk, grabbing our engagement picture in the Lam Lee frame that you bought me; the one with the heart on top with the wings. Ironically, when I got to Atlanta and pulled the frame out of my purse, one of the wings was broken. It remains that way to this day, on my desk.
.......Jonathan arrived and talked to ____ and asked her to let security know that someone would be coming by to pick up my car later that day. I hugged her neck, thanking her for everything and climbed in the car.
Let the madness begin. Jonathan was on the phone with Dwayne who was trying to find me a non-stop flight to Atlanta that had a seat on it. Meanwhile, I’m trying to figure out what the hell is going on with you. Jonathan hung up and I started to cry, to sob really. I asked him if he would hold my hand and he did; my big, strong brother held my sweaty hand and squeezed.
He calmly reminded me that I needed to hold it together, that I couldn’t do anything for you in Arizona, but I could and had to take care of our son. Deep breaths. I was on the phone with Dad who was trying to sound composed; details of your injury were sketchy as they were still working on you. Broken pelvis. Internal bleeding. Broken ribs. And, the head injury. Dad didn’t offer the doctor’s prognosis and I didn’t ask, didn’t want to hear it honestly. I was scared and felt even more isolated, except for one thing; Baby Corbin.
I told Dad that I wanted to make sure there was a bed for me in your room that I wanted to stay with you. Also, I wanted to make sure that there was someone there that could check my blood pressure and make sure our son was hanging in there alright. Dad cried, “Oh, Baby. You can’t stay with him because he’s in ICU.” I didn’t understand how serious it all was then; how dramatically life was changing.
I got off the phone with Dad and immediately called D. I got her voicemail and kept calling until she answered finally on the fourth try. I told her that you were at North Fulton Regional Hospital after a motorcycle accident with a head injury. I asked her to call Doc and ask him if you were at the best place for your injuries. Surprisingly, it wasn’t long before she called me back to assure me that you were at one of the best hospitals for head injuries and she was already on her way to the hospital. She was still there when I came in after 2am.
..........I took to packing which wasn’t easy either. What do I take? I can’t take it all. How long will I be there? Am I coming back? I wound up packing work clothes thinking I would need to work as long as I could so we’d have some income coming in. Funny looking back on that now as I never went back to work pregnant. I had to buy everyday casual, hospital sitting clothes when I got to Atlanta.
Still packing, I stared into my closet organized by color and style. I wish I could blame you for my OCD problem, but think we just merely exaggerate each others. I scanned the clothes and landed near the back on black. Black pants, black button down shirt, black shirts, black dresses. Black dresses. I packed two with the hope that I wasn’t going to need to wear them to your funeral, a thought that hit me deep in my gut.
.......Aunt S was hovering like a mother would do, but not sure what to do for me. Uncle D was still on the phone and Jonathan was too. Once my bag was packed, I hugged little B’s neck one last time and then D. How do I explain this to D? I asked if he knew why I was having to leave and wouldn’t be coming back. He said “yea, Uncle Danny got hurt on his motorcycle.” It broke my heart to leave those boys when their mom was gone too; knowing that I wasn’t going to be living here, with them, watching them grow up, watching them grow up with Corbin running behind them.
.......When we got to the airport, I checked in and then we all walked to one of the food court areas. Jonathan made me eat something even though I felt like I’d throw it up. He also bought me something to eat for while I was on the plane.
Ironically, well, orchestrated by God, Pastor M, M and others were headed to a conference and were at the airport too. They found us in the food court and they all huddled around me, laid hands on me and prayed for you, for me and for Corbin. It was a bit comforting to me although I didn’t know what I was facing when I got to Atlanta.
It was time for me to get to the gate, where I had to go alone. Jonathan walked me as far as he could go, then stopped and hugged me. There were no words to say and he knew that. He just hugged me, told me he loved me and we walked away from each other.
Leaving Arizona under those circumstances, following all the drama of the past few weeks, knowing that we weren’t coming back and walking away from the dreams of being close to my family, seeing them regularly, vacations together, holidays together, summer barbecues with the kids swimming in the pool; all those dreams vanished into nothingness. No alternate plans, no other dreams, no future, no understanding; just black.
.......I sat on the front row in coach class; alone. There was no one on the whole row; all six seats were empty, but mine. I chose to sit near the window on the right side of the plane and quickly shelled out the $5 for the headphones for the movie; xXx: State of the Union. I had to get my mind on something else otherwise, I’d have gone crazy.
It was honestly, a peaceful flight in that it was quiet, I was alone on my row and I was isolated from what was really happening at home. There was literally nothing I could do but pray and no one could see me crying.
Once the movie was over, we still had about an hour before we were scheduled to land. I stood up and stretched the best I could; tried to move my legs around a bit. There was a nice couple on the other side of the plane, one row back. The woman was obviously sympathetic as to how pregnant I was and traveling. She offered me their pillows, but little did she know that those pillows were not going to comfort what ailed me.
I sat again and looked out the window into the darkness. I had no idea over what state we were, but could see some lights here and there. It was then that I saw this glowing light on the ground, but it was moving with us. I knew there was no way that it was a light of the plane reflecting off the ground. Soon, I realized that it was the moon, high above us reflecting off bodies of water on the ground. The reflection was so regular that it was almost like steps. It was in that glowing light, in the analogy of steps, in the reality that the light was moving with me, that the Light of the Lord shown through to my heart. It was like that Light spoke to my heart and said that He was with me.
Tears came, of course, but I was again trying to stay calm for Corbin. The isolation on the plane just mirrored what I felt in life. ........... It was overwhelming the feeling of the unknown, being alone and yet having Corbin in me; the responsibility falling on me. I can’t really put it into words except to say that it felt like someone had reached into my chest and was twisting my heart back and forth; that someone had knocked the breath out of me and though my stomach was full of baby boy, I felt empty.
Coming up the escalator in the airport to baggage claim, I felt like I was on the path between our old life and some new life waiting for me at the top. There was no turning back time or running back and holding onto what was lost; I had to move forward, move up the stairs. My heart thudded in my chest.
As I crested the top of the escalator, there were three bald men waiting for me. I remember commenting that there were “three of my favorite bald men.” Dad, D and J all came to hug me, take my bags and carry me from the airport. No one spoke a word about you and I didn’t ask, yet. I had no idea if you were alive at that point and I was scared to ask, scared to know what may lie ahead of us, ahead of me.
.......Dad and I in the back seat holding hands. I remember D and J were talking a bunch in the front seat; J even laughed and I remember feeling like he wouldn’t be laughing if you had died. Then I felt okay to ask questions, although to be honest, I don’t remember any conversation in the car though I know Dad told me bits and pieces of what was going on with you at the hospital.
.......However, I remember Dad walking me in the doors and I said something like “I bet the next time you all thought you’d see a Diaz in the hospital, it’d be me giving birth.” I hugged everyone there and thanked them for being there and then I asked Dad where we were going.
It was about 2am and the hospital was very quiet. Dad and I walked alone down the hallway; you could feel everyone watching us and he helped support me along the way. We stopped in front of huge, wooden double doors with the visiting hours posted. 2am did not make the list, but as we entered no one paid us any mind.
The Neuro ICU is in the shape of a half moon; the center being the nurses station and the outer being the patient rooms. You were in the far corner room. We walked around the nurses’ station and towards your doorway. You were facing the window; away from the door. The first things I noticed; the tube coming out of your head, tubes down your nose and a ventilator down your mouth, a neck brace, blood pressure cuff, heart rate monitor on your finger, your left leg in traction (a large weight was hanging off the end of the bed), road rash and lots of it, and dried blood pooled in your ears.
It was overwhelming, but I tried to remain calm. Looking back, I can tell I was in shock and denial and definitely naive to the gravity of the situation. I guess everyone is when they’re entering unfamiliar territory and this was definitely unfamiliar.
The night nurse came in to check your monitor and change your IV bag I believe. For the life of me, I haven’t been able to recall his name, but he was very kind and very thorough. He took off your blood pressure cuff and took mine since I was concerned for me and for Corbin.
Honestly, I don’t remember how long I stayed in the room and what exactly I did while I was there. I think I asked Dad questions about your injuries and what all the tubes were. I believe I talked to you; something to the effect of that I was coming back by the end of the week and that you didn’t have to do this to get me here quicker; a futile try at humor in a scary moment.
I remember walking back towards the waiting room, but don’t really remember stopping. I was so tired and overwhelmed and I knew I needed to rest. I stayed that night and several there after at Mom and Dad’s house. I slept in the bed with Mom while Dad slept in a twin bed in my old room. I didn’t want to be alone. My thoughts were all over the place and it was difficult to rest.
........Honestly, days at the hospitals melted together and I have a hard time specifically recalling each day. It’s more like bits and pieces. T.E. coming by with a cooler of drinks and snacks, Pastor C visiting for the first time with a room full of visitors, Dr. Weaver (neurologist) telling me and your parents that you could die from these injuries….wow, that moment was heavy.
I heard what he said and listened, but my heart couldn’t accept it. Your dad hugged me in the hallway and for a brief moment it felt like you holding me. I remember falling into the wall and sobbing. There was a rush of people coming to my aid and someone got a chair for me to sit. I recall D.M. being there and how sure she was that D would be healed, but he died instead. I cried out to anyone and everyone, “what if God says no? What if He says no?”
With all the unanswered questions about our marriage and then adding all the unanswered questions about your prognosis and our future, a huge weight sat on my chest, on my heart. I truly found out what is meant by heart ache; my heart really ached and there was heaviness to it, a compression to my lungs. Or maybe that was Corbin’s foot wedged underneath. I felt very lost and quite alone.
I went to our house alone and tore through it looking for answers to anything, but all I found were more questions. It was haunting being there and knowing that you wouldn’t be coming back here either. I smelled your clothes, went through draws and shoes and still there was silence. No answers. Just more questions.
And, I guess that is still where we live today. Some questions have been answered, only to be replaced with others. I wish I could tell you why this happened, what our future looks like, what purpose it serves in our lives. I wish I could take away your pain, confusion, frustration and give you back these missing years. I wish I could give you happiness, joy and a positive attitude, but I can’t. I can’t do any of that. But, God can. He can do all of it and more than we could think to ask or imagine.
As we’re here at this fourth anniversary mark, I will make the most of the faithfulness of God. I will put my focus on the laughter we’ve shared, the blessing of Corbin in our lives and the good that has come out of the darkness. I know we’re not out of the wilderness yet. I know there are times that it feels like we’re not moving at all, but I have to put my trust in the Lord for He is good all the time, even when it doesn’t feel good to me, to us.
I would encourage you to first and foremost thank the Lord no matter the circumstances; to praise Him and give Him the glory for what through Him you’ve been able to accomplish. It is only with Him that we have survived. Secondly, be thankful for the many things that you’ve been given following this day four years ago; an absolutely wonderful and healthy son, a renewed confidence in the love and support you have from me, an assurance of the love and support of our families, new and true friends, provision for all life’s needs and blessings beyond our imagination. Thirdly, pray the Lord would begin to reveal to you/us our next steps and the message He would have us deliver. Fourth, forgive yourself, God and any others that you may harbor grudges against. And, finally, LIVE life to the fullest!
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Forgive my lack of updates on Danny's progress at therapy or of how the filming went over the weekend. This is all I could get through today, but I thank God for His faithfulness, for His healing, for His strength, for His Spirit and for His promises. I am nothing, if I do not have Love.
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To this. Praise the Lord!
Wednesday, August 5, 2009
Brain Dump
How many people have TBI?
1.4 million people sustain a TBI each year in the United States. Of those 1.4 million, 50,000 die; 235,000 are hospitalized and 1.1 million are treated and released from the emergency room. The unknown are those that do not seek treatment in an ER or receive no care.
What causes TBI?
The leading causes of TBI are: Falls (28%), Motor vehicle-traffic crashes (20%), Struck by/against events (19%), and Assaults (11%).
What are the costs of TBI?
Direct medical costs and indirect costs such as lost productivity of TBI totaled an estimated $60 Billion in the United States in 2000.
What are the long term consequences of TBI?
The Centers for Disease Control and Prevention estimates that at least 5.3 million Americans currently have long term or lifelong need for help to perform activities of daily living as a result of a TBI.
According to one study, about 40% of those hospitalized with a TBI had at least one unmet need for services one year after injury. The most frequent unmet needs were: Improving memory and problem solving, Managing stress and emotional upsets, Controlling one's temper and Improving one's job skills.
This information provided by the CDC was updated July 2006.
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Considering I haven't posted since June 23rd, you'd think I have lots to update you on and I do, but it's the same thing, over and over and over again; Danny continues to improve, Corbin continues to grow and I continue. Period. I just continue. More on that later.
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Details. Well, in July we celebrated, a lot. It was Danny's birthday, his brother's and his mother's. Plus, it was his parents anniversary. We celebrated Danny's birthday all week, I swear. Here is a picture of the family on Danny's actual birthday.
Corbin attended many summer camps at his preschool and had an absolute ball. The last week was Dinosaur theme and as he told me, he "ruled the school."
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Danny has continued to improve physically at Beyond Therapy and we are of course, very pleased. He has begun to do some major abdominal exercises; I watch and feel glad it's not me. Although, truth be told, I probably need to get down on the ground with him. I'm also happy to report that on Monday of this week, he walked the length of the gym with his walker, with NO assistance; no one was helping him guide his walker and no one was holding onto his gait belt. However, there were people there just in case he needed help.
He did need help a few weeks ago. Into every one's walking, a little falling must happen too. (By the way, if you know Danny's grandmother, please don't mention Danny falling. We don't need to worry the woman for nothing). Yes, he did fall, but he wasn't hurt. Ironically, he was gaiting with Candy, Super Therapist, when he tripped over the threshold and played Leap Frog with his walker. The fantastic thing is that Danny reacted and put his arms out to break his fall and held his head back. Remember the days when he couldn't even control his head? Anyway, Candy told him it'd probably happen again, just like babies when they're learning and that they'd be practicing falling. Nice. Sounds like fun. I hope I'm not with him that day.
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So, you might be wondering why in the world I titled this post "Brain Dump" and why I started with a bunch of stats. Well, here it comes.
First of all, I've been dumping my brain the last couple months with creative mash. Obviously, none of that energy went towards this blog since I think I OD'd in the other areas. Let me fill you in on what is happening, or what I'm trying to make happen.
Next week, my cousin and her family are heading this way for our other cousin's wedding. Well, on the front end of this trip, T's husband will begin filming for a promotional video of our journey. You can view his work at http://www.thereideffect.com/. He is extremely talented and I'm thrilled to see how you can be brought into our lives a bit more. Anyway, in order to help him out on the front end, I have had to compile pictures and video from the last almost four years. It's kind of hard to do that effectively when the hard drive on your Mac fries and you have to wait for a new one to be installed. I'm not bitter though.
I've also had to come up with a timeline of events since August 2005, an outline for the film and questions for interviews. Brain dumping to the max and it's hard to try to market yourselves. I can come up with a bunch of marketing ideas for other things, but how do I market my own family and our strange trip over the last four years?
And, because our story would not be complete without the addition of Dr. Kaelin and Candy, I had to arrange for interviews through Shepherd's PR department. In doing so, I included our Web site and the blog so that they knew we were for real and not some nut jobs; well, we might be, but our story is real. Nonetheless, Shepherd responded with support of our project and pitched one of their own. They may like to feature our story in one of their upcoming issues of Spinal Column Magazine. Wow! Wouldn't that get our message out to a mass of people? I'm not sure exactly what the message is as right now, it feels like the outbox is full of them.
So, we've got a short promotional film in the works, a potential article to be sent to hundreds of people via Spinal Column, and because of those two things, our Web site needs to be revamped. I want to be able to reference our Web site in both the film and article, but it needs to be one place where people can view everything; not one for old stuff and one blog for new stuff. Plus, I'd like to be able to post the film on the Home Page.
While I'm at it, if we're going to market ourselves, we need a logo. What in the world am I going to use as a logo? Not motorcycles. Not wheelchairs. So, I've come up with an idea, but I still have to touch base with the guy that designed Danny's Southland Choppers logo years ago. Once I have that, then we can build the new Web site around that and then make t-shirts!
Can you see where I've brain dumped myself into creativity? It's become overwhelming, but at the same time, I'm excited to get rolling on all of it.
Film. Print. Internet. T-shirts. Oh, my!
If anyone out there is or knows of someone that does t-shirts for fundraising, please email me at the address on the right side of this page.
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While pulling everything together for the film, reading over past updates, coming up with questions for interviews, even mine, and coming up on the fourth anniversary of the accident; well, it has me in an emotional tizzy.
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Danny walking again will be an overwhelmingly awesome experience; a goal that we once thought was unattainable; evidence of God's glory and of a persevering faith.
However, Danny walking again does not restore his brain, his heart, his soul. Brain dump.
Pointing back to those statistics at the top and those pesky unmet needs, my biggest question for God is when, if are those needs going to be met. I've mentioned this before and I may have painted a small picture of the reality, but there are brief moments when it feels that I don't know the man I live with. I'm not even sure if he knows himself.
Without going into too much detail, so as not to embarrass Danny with things he doesn't remember saying or doing, there are times when Danny gets very agitated that he is out of control. What do I mean by that? Most of the outburst is verbal and the physical part is him trying to leave the situation, whether it be pushing away from the counter or trying to leave the room. Obviously, he gets more frustrated because he can't leave the room or the conversation adding to the problem.
Thankfully, until a couple weeks ago, Corbin had not seen Danny go to what I can only describe as the crazy, psycho place. I know that sounds cruel, but it is truly so out of Danny's character that it feels crazy. Danny was upset with me because I refused to help him do something (he is able to do it himself which is why I refused). He began to yell and physically began to try to push himself away from the sink, and he pushed his legs so hard that the footrests' posts came out of the holes. Hello, crazy, psycho place. Unfortunately, Corbin heard the commotion and drove his little car to the doorway and told Daddy to stop it. Daddy in turn told him to stop. Danny went into his child and I had to quietly reprimand him. He calmed down and did not remember it when I asked him about it later.
But, I bet Corbin does. I do.
Later, I had to have a talk with Corbin about Daddy and his brain. It was something to the effect of because Daddy hurt his brain, sometimes he says and does things that he doesn't mean, but that doesn't mean that Daddy doesn't love you very much. Yeah, that was fun. I just pray on some level that he understands or that God protects him from the memory of those moments. I pray that he sees Daddy for the man that he is, that he wants to be, that he is working to become.
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Folks, we're dealing with a brain injury. There is no healing except that which comes from God and I need your help in praying for Danny's mind. His mind is the source of all that is "off" in him, in his body. I don't know how God's going to do it, but I need it, we need it.
I pray that with the end of physical dependence, these frustrations that seem to spawn wild-eyed angry moments will also cease. But, what if the frustrations just move to something else? I have no answers to any questions, except Jesus.
Without Him, I am nothing, I have nothing, I can do nothing. Without getting too super spiritual on here, I have really come to understand that without God, my life, our lives cannot transform. Does that make sense? I'm really at the end of my ability; I can't heal some one's brain. There is no medication, no stem cells, no acupuncture, no positive thinking that will restore Danny's brain. His injury is categorized as Diffuse Axonal Injury. That means, that the injury is throughout his brain, not localized. Google it.
So if we need God to really intervene here, why hasn't He already? What is He waiting for? Maybe me, maybe Danny, maybe it's you. Maybe our story has to continue to reach more people. Again, I have no answers. I can only cling to the Promises He gives us in His Word. It's all I have left to depend on without fail.
Tuesday, June 23, 2009
Like Christmas morning...
Photo taken on Father's Day of four generations of our boys.
So goes this past week in regards to Danny's therapy. I mean, I've made my list of hopes, dreams and goals for Danny and our family and based on Danny's progress I relatively know that at some point they may appear "under the tree." I just don't know when Christmas is and in this analogy, Christmas comes more than once a year.
Video from Friday, June 19th without Bioness on right leg.
Wednesday, June 17, 2009
Gifts inside the Grief
Corbin has this cute thing he says when he gets in trouble; "Mama, I lost my feelings." While I know he means that I hurt his feelings by getting after him, it touches my heart in the way he is trying to convey the message.
I, too, have lost my feelings.
My feelings are all over the board; off the board really. I go from highs to lows, east to west, longitudes and latitudes and just plain attitude. Again, I can't pinpoint to what I need to address these lost feelings. Who do I need to talk to to work it all out and bring life to this reality? Thus, the numbness sets in and I think about what was, the people we were and the life we enjoyed living and I grieve. I suffer. We suffer.
“For it has been granted to you that for the sake of Christ you should not only believe in him but also suffer for his sake.” (Phil.1:29)
Thanks, but no thanks. I will just take my happy, go lucky, Christian living. I'm not spiritually mature enough to be granted such a privilege. God, give it to someone else more worthy of such a cause. I don't remember suffering being in the agreement when I opened the door to you. I didn't check that box agreeing to those terms and conditions; or did I?
Ouch. It isn't in our born nature to want to suffer and we avoid it at all costs. I mean, who really says "thank you sir, may I have another?"
I suppose we can bear suffering knowing and believing that His promises are true. There is a silver lining.
For just as the sufferings of Christ flow over into our lives, so also through Christ our comfort overflows. (2 Cor. 1:5)
But those who suffer he delivers in their suffering; he speaks to them in their affliction. (Job 36:15)
My comfort in my suffering is this: Your promise preserves my life.(Ps. 119:50)
He said to her, "Daughter, your faith has healed you. Go in peace and be freed from your suffering."(Mark 5:34)
“Now if we are children, then we are heirs—heirs of God and co-heirs with Christ, if indeed we share in his sufferings in order that we may also share in his glory.”(Rom. 8:17)
Silver lining. I was honored to find such a silver lining the other night; it was inside my child's heart.
I have often been plagued by the question of how these circumstances are affecting Corbin. Does he sense that something is "off?" Danny struggles with fatherhood at times and I find myself having to step up to the plate and be the tough one along with the nurturing one. Corbin in his developing three year old ways, recognizes that Danny doesn't have the ability to jerk the proverbial knot in his neck, so he tends to push the envelope further with Danny than he does me. It burns me up that he takes advantage of this, but moving back to my point. How does living with Danny's disability develop foundations of person in Corbin?
Sunday night we were able to take Corbin with us to see The Gipsy Kings concert, thanks to our friends K and D who came along for the fun. It enabled us to spend some time as a family, especially since Corbin is obsessed with Gipsy Kings music. Seriously, he is.
Nonetheless, about halfway through the concert, after it was dark, a young couple about our age entered and sat at the end of our aisle with their handicap son. Their son was about Corbin's age and was confined to a wheelchair. Being the active and observant little boy that he is, Corbin kept passing by these folks and I'm sure was working out this family in his little brain. He asked our friends K and D what the wheelchair was, what had happened to the little boy that he had to have a wheelchair and why. Heavy questions and he just kind of soaked it all in.
He'd watch the concert, sing along and steal glances at the little boy. Corbin had obviously made an impression on the other mother because she gave him a small stuffed lion. Corbin looked at it, clutched it and ran in my direction. I gave the obligatory wave of appreciation. But, what Corbin did next stopped me short and broke a bit off the wall of numbness.
"Mommy, I want you to talk to that boy." he says. "Why, Corbin?" I reply. "Because I want to give him my necklace." he answers.
Blinking back tears, I pick him up and hug him. K and D had bought a flashing, colorful light filled necklace for Corbin. Actually, they bought two because he broke the first one and cried wanting another. And, here he stands before me telling me that he wants to give it away.
So, Corbin gave out of his heart. He recognized a difference and gave a gift.
I found a silver lining.
As Kim Arnold writes what the Lord impressed upon her heart, the gifts are greater than the grief.
For this moment, that is enough.
Update on my nephew, Brett:
Thankfully, Brett does not have cancer. The cyst in his femur is a "shadowing" on the bone where it seems hard tissue and soft tissue meet. The doctor would like to see Brett in four months with a new X ray to see how the femur is healing. Thank you for your prayers for my brother's family and specifically for Brett. Praise the Lord! Another gift in the grief....
Wednesday, May 27, 2009
Fun times + hard times = life
Unfortunately, our time outside was cut short since some idiot that had robbed a nearby bank was traveling on foot and armed. Security came outside and gathered everyone inside and then locked down Shepherd. No matter, Danny still walked so much during those two hours, outside and inside, that his shirts were soaked through with sweat. Glad to know his body is working properly since he didn't sweat for so long.
We also had our check up appointment with Dr. Kaelin and he was very pleased with Danny's progress and weight loss. Danny was more excited that he was given the green light to drink a beer, if he wants one. I actually took the boys out to grab a salad and a slice the next week and Danny had a Newcastle and I had a Corona, and Corbin behaved. It was really nice to sit there and be a tad bit more normal; to have less restrictions. Amazing what the ability to enjoy a beer did for Danny's spirit.
Life surprises me sometimes, well, rarely. I'm now at the apathetic part of life where I'm not really shocked by much. Nonetheless, I started this entry yesterday and I'm glad I waited until today to post it because of what I have to add next.
Danny had therapy yesterday that kicked his butt. I'd ordered his own walker for the house to do exercises with; sit to stands, transfers, etc., but no walking yet. He took it with him to therapy yesterday so they could get it set up for him and he could practice with it. He walked a total of three hours; first hour with the walker, second hour on the manual treadmill and last hour with the walker again. At the near end of the last hour, after being fatigued, Danny was able to do something huge. Twice, he walked unassisted with the walker for about 15 feet each time. I was so proud of him and I believe he was even proud of himself and rightly so! Candy told him he'd set the bar really high, so she'd like to see him do more of that in therapy so we can translate to the home. Yea, Danny!
On a closing note, I have to ask for prayer for my nephew Brett. He is the youngest of my brother's two boys. Doctors have discovered a "bone cyst" in his right femur, near the knee that they think may be cancer. Unfortunately, the facility that does pediatric MRIs can't take him for two weeks. Please pray for Jonathan and Kari as they deal with this heavy issue with their son and pray also for Brett that the cyst will not be cancer. Brett is four years old; he will be five years old in July. I know you all are fierce prayer warriors and I am thankful to be able to call on you during our times of need.
God bless you and keep you safe!
Wednesday, May 6, 2009
After the caca, comes the flowers.
Now, I know all parents are busting their buttons at how brilliant they think their child is and there is often the parent comparison game at all play dates and parties. However, the Holy Spirit grabbed me with the deep spiritual suggestion of what he said. I guess if God can speak through a jackass, he can certainly use my angel Corbin to get my attention. Nonetheless, I am constantly reminded of God's love for me through Corbin.
I can not imagine God loving me more than I love Corbin and yet, He does and He shows me that in at least a small way everyday. It is the split second in conversation with Danny that I forget our circumstances. It is the unsolicited "I love you, Mama" from Corbin. God shows His love for me in the easy way schedules fall into place and even when I have a few moments to paint my toenails. He shows me through other's stories of courage and faith through their own journey (see http://www.katherineawolf.blogspot.com/). He confirms for me that He is there when funding suddenly arrives for that therapy invoice I just received. But, out of the mouths of babes, God nudges my faith; after the caca, comes the flowers.
I gotta tell you, it's about time we see some darn flowers. I mean, I need the Atlanta Botanical Gardens to show up at my front door. I live in a perpetual state of fear that I have to push back from the forefront of my thought or I'll go crazy. For a few short sentences, okay, perhaps a couple paragraphs, I'll let you in on my fears. Maybe if I air them out, it won't seem so scary or at least you'll know how to pray for this crazy lady.
Money: I know right now, everyone seems a bit nervous about their finances, but I gotta confess, I'm terrified. Now, I'm not holding out my Shriners' Circus bucket asking for your spare change, but just venting a bit. As I see the money in our checking account dwindle down each month, the money in my 401K go up in smoke and with no other savings, I panic. I'm in a connumdrum of sorts. I could work more hours, but I wouldn't make anymore money since I'd still be having to pay for a sitter for Corbin and an assistant for Danny. So, is there something I can do from home? Seriously, I can't even keep my toilets cleaned, much less spend time on the phone or computer trying to earn some extra cash.
Here's a biggie for you; when/if will Danny be able to work again? Will it even be lucrative since he will have to learn to overcome some cognitive deficiencies? Will we lose the disability that we get if he starts to work? What if he wants to work on motorcycles again (I'll save more on this subject for another post. It might take a few.)? We have no other back up plan in place, but holding out our bucket. And, honestly, it scares me to have to depend on you because you're just trying to make it for you and your own family. Why should you help us? And, if you can afford to help someone, what makes our need greater than someone else's?
How long will Danny have to be in therapy? I don't want to quit too early and him lose momentum, but I don't want to run us into the ground either. Wouldn't that be great to get him walking again only to fall into the debt pit that is so healthy for marriages? At this point, would it be good to quit Beyond Therapy and hire a personal trainer? Is he there yet? What is the right time?
Pause. I need to vomit now. Maybe this venting my fears thing wasn't such a good idea. It seems to making me feel more like caca and much less like flowers.
I can make it. Just keep typing. There is a revelation in all this confession, right?
Okay, now that Danny can ride in my car, we take it as much as possible. The problem is this though; his wheelchair doesn't fit in my trunk, so we have to put it in the back seat with Corbin. Thus, we can't have anyone else with us or any groceries either; even my purse gets shoved up under Danny's feet after he gets settled. Plus, my car is old, 1990 and has almost 185K miles on it. Now, granted, it is a Mercedes and they can go forever, but my Dad isn't here anymore to help keep it running well and Danny can't do it physically. So, bottom line to this whole paragraph, is it time to buy a new car?
The questions continue. Do we have the money to buy a car right now? Sure, but it would take a BIG chunk out of our pocket and see nervous comments about future funds above. My car is paid for so we have no car payment which is great. Do we really want to add something else to the outgoing column in our budget? No, I don't, but my car is not working for my family. So, do we buy new or used? Do we buy a car, a station wagon, a mini van or a SUV? What is right choice? And, more often than not, if I don't know what to do, I just don't do anything. However, we've been talking about a new(er) car for me for a long time, but I'm terrified to pull that trigger and have it come back to haunt me months down the road when I have to pull Danny out of Beyond Therapy prematurely.
Ahhhhh! And, that is only about money. I think I'll keep some other fears for other days before you all plan an intervention and men in white uniforms bring me the latest style of jacket, the straight kind. However, from all the questions, He is the Answer and by the life of my little boy, God tells me how much He loves me. If God loves me a fraction of what I love Corbin and I'm willing to walk through the wilderness for him, what more will my heavenly Father do for me?
He makes promises and keeps them all. Do you want to see one of the promises he made me? The verse is found in Isaiah 43:19.
See, I am doing a new thing!
Now it springs up; do you not perceive it?
I am making a way in the desert and streams in the wasteland.
Below, Danny is doing a new thing; a marvelous thing. This day brought a renewed sense of hope when my well was dry. And, after two hours of walking over ground (mostly with the walker), the two therapists helping Danny laid hands on him and thanked the Lord for what He has done in Danny's life.
God has planted seeds all along this journey. Some fell on the path, some in the thorns and some in the good soil. Lord, let us be like the good soil, producing a crop for your Kingdom.
After the caca, comes the flowers......Amen.
Tuesday, April 28, 2009
Delayed, but I'm here and you are too!
Anyway, I have been reading more in the last year; only fiction as a means to escape from my reality and into someone else's tale. It works, keeping my mind on something else is nice.
Well, I happened by Costco and picked up a few paperbacks feeling confident in my selections. I read the first one by Harlan Coben (fabulous) and then picked up Nicholas Sparks "The Choice." Now, I hear all you "The Notebook" fans yelling at me that I would only be torturing myself with a Sparks novel, but I felt okay about reading a real love story. They aren't always happy endings which is true life, right?
I did read the back of "The Choice" and it was rather vague about the decisions this couple has to face to keep hope alive in their love, or something like that. The majority of the book was a flashback of sorts on the way the met, fell in love and what led this man to the hospital.
WARNING: If you haven't read the book and don't want it to be spoiled a bit, stop reading and pick up later in this post.
Anyway, Travis is in the hospital to see his wife who is a doctor, but she's not there working, she's been a patient for 84 days after a car accident rendered her comatose.
Oh, PERFECT! This is just great, what I've walked into, read into, whatever. Now, I have spent the time getting to know this fictitious couple and enjoying an eye into their relationship and blam! I find myself in this book.
Luckily, I didn't have to deal with the issue that Travis had to in the book. He either had to honor his wife's wishes for her feeding tube to be removed after twelve weeks or to ignore it and hope she wakes up. I won't spoil that for you, but it brought those early days of Danny's accident back to the forefront of my mind.
Danny and I were young when the accident happened; I guess we still are, but I feel old. Anyway, we didn't have wills or power of attorneys or living wills. Who'd thought we'd need something like that before our hair started to turn gray? However, months, probably years before Danny's accident, we happened to talk about what we'd want should something happen to us. I believe it was on the heels of the Terri Schaivo case that was a focal point of the media at that time. Danny told me he'd "rather be dead than stuck in a wheelchair."
Those words haunted me in the early and unknown days; have we outgrown the unknown days yet? No matter. I just knew Danny wouldn't want to live if he had a choice. Thankfully, it never came to a point where a choice of life as a vegetable or death had to be made. But, there were other choices that I tried to always do as I knew Danny would want me to do. But, could I have pulled his feeding tube? Could I have turned off the machines? Praise the Lord I didn't have to ponder those things.
But, reading this book and reading how this husband was dealing with his wife in a coma and not having answers; I understand it, been through it and have come out beaten, but not broken on the other side.
Danny continues to get better. Last week, he walked with a walker and two assistants outside. It was a big day and I was so proud of him. He has done so much walking recently at therapy; he walks in various ways at least two out of the three hours he is there. He has also been able to stand on a scale to get an accurate weight; he's at 225lbs. And, as long as I'm with him and it's just us or with Corbin, we ride in my car. He is able to transfer into the car with just my help and it's amazing what a difference it makes to his attitude.
It's been rather crazy lately what with travel schedules and Spring Break and doctor's appointments. If you recall from the last post, Corbin and I were heading down to the beach for a week. We did have a great time and Corbin loved the sand. The weather didn't hold up the whole time, but it was nice to get away. Of course, when we got back I developed strep throat and a sinus infection and the day after I went to the doctor, I had to take Corbin. He was diagnosed with another double ear infection. Fabulous! We survived and are now getting back in the swing of things and gearing up for summer.
Here are some pictures of our recent activities:
Strategic car maneuvering on the balcony at the beach house. Corbin did this several times a day. Notice he still has his pj's on, so he starts early. Also, Mom, look at what he is doing with his mouth. Wonder where he got that look of concentration from? Must be Danny:)
Our first walk on the beach. Corbin loved it and I got some great pictures.
Look. It's the fake smile Corbin learned from Danny and Mom is just trying to remember to keep her chin up a bit to make sure it doesn't look like a double. Nonetheless, I love my boy!
Thursday, March 19, 2009
Is anyone out there?
Now, I know that writing this blog is just as good for me as it is to the few of you that actually keep up with it. The reason I ask is that it's been pretty quiet on the comments and email sending, so it makes me think that no one is out there. Just let me know that you're there and maybe I won't feel so weird writing my thoughts and my life out in the big, huge world of the blogosphere.
Moving on and considering my previous post was quite introspective, I will make every attempt to keep this one informational.
Danny's progress in Beyond Therapy has truly been picking up speed (I have attached another gaiting video for your viewing pleasure from March 13th). As most of you or perhaps none of you know, I only work part time. Mondays are my errand/Corbin days and Fridays are my take Danny to Shepherd days. This schedule works well and allows me alone time with both my boys. I have a love/hate relationship with Fridays. I love to be with Danny and see all the progress he makes, but I hate it for him that it just takes so dang long.
For the most part though, Fridays are great because I get to get the firsthand scoop from his therapists on how he performs earlier in the week. Well, a few Fridays ago, I got a huge surprise. Candy (super-therapist) asked me if Danny had told me about his 10M test, which he, of course, had not and to which she was shocked that I didn't know. What is a 10M test, you ask. Well, it means that Danny had to walk 10 meters (imagine that) using the standard walker with only one assistant. And, he did it. I was thrilled to say the least, but it really hit me when I saw a before and after clip.
Nick (super-therapist 2) showed us a clip of Danny gaiting on 12-24-08 with three assistants; one on the stool behind him, one holding/guiding the walker and another helping him keep his trunk upright. And, just two months later on 2-24-09, Danny walked and succeeded in his first 10M Test. See? I told you things seem to be speeding along quite nicely now.
Another boost in the hope department came from another "patient" who is not apart of the Beyond Therapy, but who works out in the gym each day. I'm not even sure what his name is, but let's call him Joe. Danny was walking up on the track one Friday with the Argo while Joe was walking his laps around the track. Joe has a spinal cord injury that he suffered six years ago when a scaffolding fell while he was working on it. Joe is dedicated to his workouts. I mean, he sweats through his shirts and is always there when we're there. I admire his work ethic. So, while Danny was taking his laps with the Argo, Joe would walk a lap holding onto the railing and then he'd come and rest in the chair next to me which is when I got my dose of hope.
Apparently, Joe has only been able to "walk" for the past year and when he first started, he said he couldn't even walk half a lap without taking a rest. So, he's been where Danny is in some ways. Joe has seen Danny progress and as we're watching Danny work with the Argo, he looks at me and says "it won't be long now." Inspiring. That meant just as much to me as what I hear from Danny's therapists, perhaps more since Joe has literally walked this path. "It won't be long now" rings in my head when I get a bit gloomy. It won't be long now.
In all this work, we've had some fun too. Check out the snow in Atlanta on Sunday, March 1st. This is the view from the balcony in our bedroom. Yes, that is a cemetery, but we like it. They're quiet neighbors. It's too bad this pretty scene didn't stay very long. It is beautiful from the mountain.Check out these pics I snapped while we were watching American Idol last week. Boys being boys and awesome moments caught.
We were also blessed with a visit from my dad this past week. I was thrilled because I was able to make it a surpise for Corbin and for Danny. It never really is a vacation for him since I usually give him a Daddy-do list and he was on hand to help take Danny to therapy too. If you remember, my parents were just here during the holidays and my dad was amazed at Danny's progress since he was here at Christmas. He says it's like seeing a different person. Another boost of hope. Here are a couple shots while he was here.
One more thing before I give you information overload, Corbin and I are headed to the beach next week. I'm so excited and can't wait to feel the sand between my toes and the sun on my face. The last time that happened was one month before Danny's accident and I was 7 months pregnant with Corbin. I have a feeling it'll be just a bit different this time, but then again what isn't different about our life since then?